So, I’m sick…no really!

So, I got a shitty diagnosis last week; it could have been worse, but I was really hoping it would have been better.  I’ve been suffering for more than a year now with chronic back pain.  I didn’t think too much of it, but a few months ago it got so bad that I could barely walk.  So, I bit the bullet and went to a doctor.  I thought that this doctor would be pretty good since he’s a relatively recent graduate of WVU, but turns out he’s one of those alternative medicine freaks and said I should see a chiropractor; uh, yeah, I’d rather do something that works.  He also couldn’t seem to remember that no accident preceded my back pain, it just sorta happened.  I got a prescription for Perkoset, which helped quite a bit (not my hip, however, that still hurt), but it makes me groggy and also insomniatic, terrible combination (think mental blue balls).  Plus, I may feel better, but I’m not better.  Kinda like what “alternative” medicine does via the placebo effect.

So I get x-rays of my back and hip; immediately I get referred to a rheumatologist .  Apparently, my regular doctor saw something that wasn’t expected.  I generally feel better when I move around as opposed to sitting, which isn’t consisten with something such as arthritis, but arthritic changes were noted as was spinal curvature.  So I go off to the rheumatologist last week and get to hear all about what’s likely wrong with me.

The doctor gave me an exam, measuring how far I could bend and such, then talked about my x-ray report.  What was seen was a fusing of my hip bones into one mass and the constriction of my vertebrae; basically my spine is also fusing together, called “bamboo spine” in an effort to make it perhaps feel as if I’m green and saving the planet or something.  It’s a condition called ankylosing spondylitis; it’s genetic, there is no cure, and it is degenerative, meaning it will only get worse with time.

So the treatment for AS is basically the same as for RA: I’m on an NSAID called indomethacin, and already have seen the side-effects.  One of the side effects is the hindrance of the production of prostaglandins, which line my digestive tract and stomach, which can lead to bleeding (peptic) ulcers and perforations.  Nice.  It also makes me dizzy as hell, which is kind’ve fun I guess.  It also can lead to psychosis and other psychiatric problems, turning me into a raving lunatic I guess.  This could actually be even funner come to think of it.  And of course, the NSAIDS help, but they can’t stop this stuff and they can’t kill all of the pain.  My hip still hurts like hell and I’ve some trouble walking.  I went to the mall yesterday and had to stop and sit about half a dozen times.  It was so bad that I couldn’t even stand in front of Victoria’s Secret long enough to get enough mental imagery for an all-night spank fest.   Sad.

So, while things could be much worse, it looks as if I have more problems to look forward to.  AS can lead to kidney problems, heart problems, lung problems, few other things.  Plus, if I understand it correctly, AS is also an autoimmune disease, so I’m more subject to pathogens.  Oh, and it also makes me tired from what I’ve read.

Ok then, rant is officially over.  No more bitching, won’t fix anything.

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12 Responses to “So, I’m sick…no really!”

  1. Carolyn Ching Says:

    There is a drug-free dietary treatment for AS discovered by an immunologist, Professor Alan Ebringer, Consultant on Autoimmune Diseases to the NIH in Washington. Give up eating starch. All the information about it is in the book, The IBS Low-Starch Diet. The author. Carol Sinclair, wrote the book before her AS had been properly diagnosed – she had all the symptoms, including back pain, joint pain, gut pain & bloating. All the info. is in the book, but basically, AS developes in people with the HLA-B27 gene. (A blood test will reveal this gene). The bacteria, Klebsiella, which lives in undigested starch in your gut, resembles the HLA-B27 gene. When the immune system tries to destroy the Klebsiella, it also begins to destroy your body cells, producing the symptoms which cause inflammation, pain, etc., in many parts of your body. A low-starch diet gives the Klebsiella nothing to live on and eliminates your symptoms. Simple but it works! People with AS have a huge range of symptoms in addition to the arthritic ones – even eye problems which can cause blindness if not properly treated. Get the book – it’s for sale on Amazon – read all about it. Also contains over 200 recipes. Fantastic book. Has changed my life.

  2. farslayer9 Says:

    Actually no, I’ve already read about this “treatment”. First, the gene is NOT present in everyone with AS, and it is present in a good majority of people without AS. Second, there is a weak correlation between Klebsiella and AS, but you cannot infer causation; this is a logical fallacy known as post hoc ergo propter hoc. I washed my car today, then it rained, thus washing my car causes it to rain. Klebsiella is present in our colon, thus we should ALL have AS, but we don’t. It attacks people with weakened immune systems. I have an autoimmune disease, thus my immune system is weak, thus I could develop pneumonia. Reducing starches does nothing.

    I’m also not impressed with authors or with people who self-treat; they are not doctors and are very subject to placebo effects. Also, their “treatments” are nothing more than anecdotes; the plural of anecdote is not data. If this actually worked, it would be written up in a scientific journal and be popularized. There may be some linkage between this bacteria and AS, don’t get me wrong, but until I see evidence I will default to the null position; and no, the bacteria doesn’t look like the gene, this is simply wrong. It may expose similar protein markers on the surface as do my healthy cells, but genes are not exposed. Genes are simply combinations of base pairs with start/stop codons, they are not exposed outside of the cell nucleus. But these markers vary greatly within Klebsiella, which is why it is so resistant to antibiotics. A simple search at PubMed gave me this information. I suggest ignoring books written by authors who claim to have cures and stick to real science. The reason this person wrote a book is because his work is not accepted by other immunologists for some of the reasons I gave. There is no simple cure for what I have. A good comparison is cold fusion; doctors/scientists who go straight for a book and bypass peer review do so for a reason; they can’t win at peer review.

    BTW, hope I didn’t come off too combative, I’m glad you stopped by and glad you posted, I don’t get nearly enough traffic here 🙂

  3. Pirsey Says:

    If you ever want to hear a reader’s feedback 🙂 , I rate this post for four from five. Decent info, but I just have to go to that damn msn to find the missed bits. Thanks, anyway!

    • farslayer9 Says:

      If you ever want to hear a reader’s feedback 🙂 , I rate this post for four from five. Decent info, but I just have to go to that damn msn to find the missed bits. Thanks, anyway!

      Actually I love feedback, but when it comes to science and medicine I demand evidence, not anecdotes. And I despise self-help books and other BS; I have a subscription to PubMed and can quickly look things up, which I’ve done extensively with AS since I’ve got it.

      And yeah, I hate MSN as well, sorry you had to go through that 🙂 Do you have AS by chance as well?

  4. Carolyn Ching Says:

    Professor alan Ebringer is a peer-reviewed, published immunologist with over a hundred published papers, most recently Clinical Rheumatology, March 2007, who specialises in AS and Crohn’s disease. HE DIDN’T WRITE THE BOOK. The author, Carol Sinclair, wrote it initially because she had IBS and had gone from doctor to doctor for many years without getting any satisfactory treatment. Nearly at her wit’s end she discovered through a TV programme made by the doctors at Addenbrook’s Hospital, Cambridge, England, that giving up wheat flour and all products made with flour, would eliminate her IBS symptoms. She had many other back and joint pains and stiffness, including at times being so debilitated that she was unable to dress herself, but because she controlled her joint symptoms with cortisone injections and aspirin, she never connected the IBS symptoms to the joint pain. She’d never heard of AS.

    She spent about 10 years refining the diet, devising low-starch recipes, and then writing a book about IBS after discovering that it was not just wheat-flour – it was all starches that caused a return of the symptoms. After the book was first published she was contacted by a group of AS patients who had been put on a low-starch diet by the immunologist Professor Alan Ebringer (also Hon. Consultant in Rheumatology, UCL School of Medicine, Middlesex Hospital, London and Consultant on Autoimmune Diseases to the NIH in Washington.) They’d been given only the most rudimentary diet sheet and were desperate for more dietary help and recipes. They said her book was the only one ever written which would work for them. Professor Ebringer then contacted her. When he told her what the symptoms of AS were, she was amazed, because she’d had all those before she went on the diet but they had ‘mysteriously’ faded away – and she realised this must be after she began the diet.

    She was tested for the HLA-B27 gene, and was positive. She was referred to Professor Ebringer who did further tests and investigated her family history. She discovered her father, grandmother, three of her cousins and two of her nephews have diagnosed AS. Professor Ebringer confirmed that in his opinion, she had pre-Ankylosing Spondylitis – although she had no bone degeneration visible on x-rays. He believed this was because she had been on the diet for so long.

    The book explains that only a percentage of any population have the HLA-B27 gene, but that 96% of people with the gene develop AS. Regional differences apply, i.e. people from northern countries have a higher percentage of the gene and therefore more AS sufferers. Highest rate is amongst the Haida Indians in British Columbia and the Inuit people, who lived on an almost starch-free diet before they adopted Western diet – but now have a very high rate of AS.

    The latest book, although still titled The IBS Low-Starch Diet (publisher’s choice of title because one in five of the population throughout the western world suffers from IBS) gives all the information about the full set of AS symptoms, over 200 recipes and tells you how to test for starch in your food (it’s in almost all manufactured foods these days, as modified starch.)

    Anyway, it’s kinda crazy to say you don’t believe in the diet without trying it even for a few days. It’s very simple to find out whether it works for you. Just buy or borrow the book and try the diet. Within about 2 weeks you should notice a difference. Many people find it makes a difference after just a couple of days.

    • farslayer9 Says:

      Wow, absolutely amazing amount of rubbish there; so let me get this straight, we’ve connected diet to easing the conditions of AS based upon a single, anecdote; where is the peer reviewed study showing that reduction of wheat eases this condition? Cause actually, I have two RAs who disagree.

      Professor alan Ebringer is a peer-reviewed, published immunologist with over a hundred published papers, most recently Clinical Rheumatology, March 2007, who specialises in AS and Crohn’s disease. HE DIDN’T WRITE THE BOOK. The author, Carol Sinclair, wrote it initially because she had IBS and had gone from doctor to doctor for many years without getting any satisfactory treatment. Nearly at her wit’s end she discovered through a TV programme made by the doctors at Addenbrook’s Hospital, Cambridge, England, that giving up wheat flour and all products made with flour, would eliminate her IBS symptoms. She had many other back and joint pains and stiffness, including at times being so debilitated that she was unable to dress herself, but because she controlled her joint symptoms with cortisone injections and aspirin, she never connected the IBS symptoms to the joint pain. She’d never heard of AS.

      This is an anecdote; also, the number of peer reviewed articles is absolutely of no importance whatsoever. Where is the peer reviewed study supporting your claim. I seriously doubt he’s published hundreds of articles (all of which you fail to cite) on wheat gluten. If he has, then I’ll be more than happy to read it. But let’s not forget that your premise is that the diet causes the starvation of bacteria which you said caused AS; since this has been refuted, I assume you’re going to continue to support the diet yet assert different mechanisms. Cite the study and I will read it.

      She spent about 10 years refining the diet, devising low-starch recipes, and then writing a book about IBS after discovering that it was not just wheat-flour – it was all starches that caused a return of the symptoms. After the book was first published she was contacted by a group of AS patients who had been put on a low-starch diet by the immunologist Professor Alan Ebringer (also Hon. Consultant in Rheumatology, UCL School of Medicine, Middlesex Hospital, London and Consultant on Autoimmune Diseases to the NIH in Washington.) They’d been given only the most rudimentary diet sheet and were desperate for more dietary help and recipes. They said her book was the only one ever written which would work for them. Professor Ebringer then contacted her. When he told her what the symptoms of AS were, she was amazed, because she’d had all those before she went on the diet but they had ‘mysteriously’ faded away – and she realised this must be after she began the diet.

      Wait, who is talking about IBS? And she had all of those symptoms before and they just went away? Hmm, you know, I’ll bet if someone rattled off a bunch of symptoms ten years after the fact I would probably have, at some point, had them. AS is diagnosed by way of x-ray and it is degenerative; did she stop her diet to see if symptoms returned? Do you honestly think that changing your diet will reverse bone fusion?

      She was tested for the HLA-B27 gene, and was positive. She was referred to Professor Ebringer who did further tests and investigated her family history. She discovered her father, grandmother, three of her cousins and two of her nephews have diagnosed AS. Professor Ebringer confirmed that in his opinion, she had pre-Ankylosing Spondylitis – although she had no bone degeneration visible on x-rays. He believed this was because she had been on the diet for so long.

      Again, HLA-B27 IS NOT A GENE. Also, only 1.8% of individuals with this ANTIGEN suffer from AS (source: Harjacek M, Margetić T, Kerhin-Brkljacić V, Martinez N, Grubić Z (2008). “HLA-B*27/HLA-B*07 in combination with D6S273-134 allele is associated with increased susceptibility to juvenile spondyloarthropathies”. Clin. Exp. Rheumatol. 26 (3): 498–504. PMID 18578977.) Now, upwards of 90% of those with AS have the antigen, but only 1.8% of people with the antigen have AS. Do you understand that these are two different things?

      The book explains that only a percentage of any population have the HLA-B27 gene, but that 96% of people with the gene develop AS. Regional differences apply, i.e. people from northern countries have a higher percentage of the gene and therefore more AS sufferers. Highest rate is amongst the Haida Indians in British Columbia and the Inuit people, who lived on an almost starch-free diet before they adopted Western diet – but now have a very high rate of AS.

      Your 96% figure is wrong, but I addressed that above. Just to reiterate, less than 2% of those who express the HLA-B27 antigen have AS (I already cited the study above). You’ve also not cited your information regarding culture and the Inuit, so I’ll speak no further on it; the burden of proving that is on you, not me.

      The latest book, although still titled The IBS Low-Starch Diet (publisher’s choice of title because one in five of the population throughout the western world suffers from IBS) gives all the information about the full set of AS symptoms, over 200 recipes and tells you how to test for starch in your food (it’s in almost all manufactured foods these days, as modified starch.)

      And once again, you promote a book which is based on false assumptions; you’ve not made a convincing argument for diet because you’ve cited no studies which found even a correlation, let alone causation. In fact, autoimmune diseases in general have multiple causes, so the simplistic “eat less wheat” makes little sense. Until you can cite the study finding the link between the two, you lose. Sorry, that’s how science works. The only known treatments are physical therapy, NSAIDs, surgery, DMARDs, or the new TNF alpha blockers which I may actually be getting due to the rapid progression I have.

      And what of your link to bacteria? Before you argued that bacteria in the gut were the cause of AS and that the diet change killed them; I refuted that in about five seconds, but just wondering if you’re still under the impression that bacteria in the gut can cause an autoimmune disease when approximately 90% of the population have this bacteria in them already.

  5. Carolyn Ching Says:

    Hullo farslayer9. I’ve been too busy to reply to your last letter, but I must now come clean and tell you that I am Carol Sinclair. That is the name I write under. I am the person who experienced all the symptoms and relief of symptoms, described. I went from doctor to doctor to alternative medico for years, without any help. I can understand exactly how angry you are. You’re too angry to read my information clearly. However, I would be exactly the same in your place.

    I didn’t want to tell you I was the writer because I don’t like to appear to be pushing I book I will benefit from – which is why I suggest that you borrow the book. Whether you do or not is up to you. Everyone makes their own choices in this world. You may choose to put up with your pain and illness – and take the drugs which have severe side-effects and are very expensive – or you might give the diet a go.

    I haven’t time to contradict many of your statements about the correctness of some of mine. You would see if you looked at the references in the back of my book, that my sources are all medical and reputable. One of my main sources has been the book, The Spondyloarthritides, edited by Andrei Calin, Consultant Rheumatologist, Royal national Hospital for Rheumatic Diseases, Bath, UK, and Joel D. Taurog, Professor of Internal Medicine, Will M. and Guy Burnett Professor for Arthritis Research, Harold C. Simmons Arthritis Research Centre, University of Texas Southwestern Medical Centre, Dallas, Texas, USA. Whew! I have to say that with rare exceptions, the rheumatology world does not accept the Low-Starch Diet. However, many leading rheumatologists are involved in drug testing for the major pharmaceuticals, and will not entertain the idea of drugs. Go figure! A number of rheumatologists and doctors in New Zealand and Australia are now recommending my book – because unlike the UK where I live, patients have to pay for their medication in those countries. Also, the Arthritis Foundation of Wellington, NZ, is recommending my book and the Rheumatology Department of their main hospital is using it.

    I have mentioned your very angry repost to my attempt to be helpful, to Professor Alan Ebringer. He is very understanding of your situation, having had similarly angry patients in his clinic, who had tried every avenue before being introduced to the simplicity of the Low-Starch Diet. He says if you will send me your street address, he will mail you some of his papers on the subject.

    I accept that when you first hear of it, it sounds crazy, but there is a sound scientific basis for its effectiveness – which I didn’t know about when I discovered how amazingly it worked, in me. (As I’ve already mentioned, I didn’t know at the time that IBS is one of the symptoms of AS).

    I could also send you some of the hundreds of letters I’ve had from sufferers who have found that the diet has changed their lives. It really does work, whatever you might think. You can eliminate your symptoms on this diet. You will never be cured, but you can live without the pain and the crippling effects will be lessened. At one stage my neck was so stiff that I couldn’t turn my head, and I couldn’t get my arms behind my back to do up my bra. (I don’t imagine you have that problem!!!

    Do youself a favour and just give it a try.

    Very best wishes,
    Carolyn Ching (Carol Sinclair)

    • farslayer9 Says:

      Hullo farslayer9. I’ve been too busy to reply to your last letter, but I must now come clean and tell you that I am Carol Sinclair. That is the name I write under. I am the person who experienced all the symptoms and relief of symptoms, described. I went from doctor to doctor to alternative medico for years, without any help. I can understand exactly how angry you are. You’re too angry to read my information clearly. However, I would be exactly the same in your place.

      Yeah, big shocker there; not only are you delusional, you’re writing hack pseudo scientific books to further your delusions. I. Am. Shocked. And no, not angry at all, actually I’m laughing my ass off. You’ve given no information; your “testimonial” (which is what your book is) is neither evidence nor information.

      Also, you don’t have AS. AS is diagnosed only by x-ray; since your x-ray is clean, you don’t have AS. Or let me put it another way. I have a history of cancer in my family. However, my latest bloodwork showed no cancer markers. Thus, I have cured myself of cancer. Sound familiar? If you had AS it would show on an x-ray. The HLA-B27 antigen is not used as a diagnosis, which I covered last time, which you’ve apparently ignored. Of the people with this antigen, only 1.8% develop AS. Or let me try an other way again: widgets are purple; paul is purple; paul is a widget. Same logic, same failure of reasoning. You’re a twat.

      I didn’t want to tell you I was the writer because I don’t like to appear to be pushing I book I will benefit from – which is why I suggest that you borrow the book. Whether you do or not is up to you. Everyone makes their own choices in this world. You may choose to put up with your pain and illness – and take the drugs which have severe side-effects and are very expensive – or you might give the diet a go.

      So you didn’t want me to know you’re a book whore; got it. Of course, by constantly referring to your book…uhm…kinda refutes that doesn’t it? In fact, what I would have done is refer to peer reviewed scientific literature showing diet as a treatment for AS, then refer to the book. But you didn’t do that because there is no evidence, is there?

      Oh, and painful/severe side effects, huh? Hmm, you know, just drinking water to treat cancer would be much better than chemo and radiation, less side effects, not as painful. Of course, we know water doesn’t treat cancer, and diet doesn’t treat AS. Very poorly constructed strawman there.

      I haven’t time to contradict many of your statements about the correctness of some of mine. You would see if you looked at the references in the back of my book, that my sources are all medical and reputable.

      Then you concede my points; if you don’t refute, you concede, very simple really. And you could have readily done a copy/paste of your sources, but you likely knew that was a bad idea, because I doubt they are reputable.

      One of my main sources has been the book, The Spondyloarthritides, edited by Andrei Calin, Consultant Rheumatologist, Royal national Hospital for Rheumatic Diseases, Bath, UK, and Joel D. Taurog, Professor of Internal Medicine, Will M. and Guy Burnett Professor for Arthritis Research, Harold C. Simmons Arthritis Research Centre, University of Texas Southwestern Medical Centre, Dallas, Texas, USA. Whew!

      Once again, I’m not impressed with name dropping. But, I went ahead and looked up Joel Taurog; he doesn’t seem to agree with you. In fact, he’s examining the role of HLA-B27 in the whopping 13% of those people who will potentially develop AS. See, that’s real research. He’s also examining alleles to see if there is correlation.

      Oh, and one more thing about your diet: The Spondylitis Association of America says you’re full of shit. In fact, they mentioned Dr. Alan Ebringer, the guy who put forward the diet idea. His results HAVE NEVER BEEN DUPLICATED. Yup, that’s write, never duplicated. In fact, there is evidence that a change in diet DOES NOT AFFECT SYMPTOMS.

      I have to say that with rare exceptions, the rheumatology world does not accept the Low-Starch Diet. However, many leading rheumatologists are involved in drug testing for the major pharmaceuticals, and will not entertain the idea of drugs. Go figure! A number of rheumatologists and doctors in New Zealand and Australia are now recommending my book – because unlike the UK where I live, patients have to pay for their medication in those countries. Also, the Arthritis Foundation of Wellington, NZ, is recommending my book and the Rheumatology Department of their main hospital is using it.

      There is a reason it’s not accepted; it doesn’t work. Dr. Ebringer is wrong, follow up studies failed to reproduce his results. Not hard logic here, very simple actually. In fact, the two RAs I know do not accept it, nor is there evidence for its efficacy in journals PubMed or Immunology. There’s a reason; it doesn’t work. The rest of your paragraph is not even wrong; RAs absolutely do entertain the use of drugs. NSAIDs work (they work for me) as do other types of treatments, one of which I mentioned before. So again, bullshit. And I don’t care who recommends your stupid book, you’ve provided no evidence that it works. The only study mentioned, the one by Ebringer, has been refuted.

      I have mentioned your very angry repost to my attempt to be helpful, to Professor Alan Ebringer. He is very understanding of your situation, having had similarly angry patients in his clinic, who had tried every avenue before being introduced to the simplicity of the Low-Starch Diet. He says if you will send me your street address, he will mail you some of his papers on the subject.

      Oh, so you’re a buddy of Ebringer? Wonderful, you two can enjoy being wrong together. I really don’t care if you told on me or not, but until you provide a peer reviewed study showing causation between diet and treatment, you may as well tell me that you told Santa Claus.

      And I don’t want him to mail his papers, I want to read about them in peer reviewed journals. Cite the source and I absolutely will read it. How about I send him my notes on the time cube? Get the point? And why do you insist that I’m an angry patient? I’m irritated that you’re pushing nonsense and won’t answer simple questions. All you need do is cite a source in a scientific journal, yet you’ve failed to do so. You just keep going back to your book, which I believe is due for an Amazon review.

      I accept that when you first hear of it, it sounds crazy, but there is a sound scientific basis for its effectiveness – which I didn’t know about when I discovered how amazingly it worked, in me. (As I’ve already mentioned, I didn’t know at the time that IBS is one of the symptoms of AS).

      No, there isn’t. Ebringer is not infallible and has been refuted by other studies which did not duplicate his findings. And the connection with IBS is news to me; I’ve read of diet changes to help IBS, but they will not help AS. I still doubt you have AS since it wasn’t properly diagnosed by way of an x-ray (I’m getting this from your last post).

      I could also send you some of the hundreds of letters I’ve had from sufferers who have found that the diet has changed their lives. It really does work, whatever you might think.

      Wow, so you’re sending me even more testimonials! Holy crap, you guys are just awesome at your highly scientific approach. Again, where is the study? Did your letters account for the placebo effect? What is your population (how many tried the diet and DIDN’T benefit?). Seriously, researchers you two are not.

      You can eliminate your symptoms on this diet. You will never be cured, but you can live without the pain and the crippling effects will be lessened.

      So diet prevents the fusion of bones? Wow, didn’t know that, here I was taking NSAIDs and going to physical therapy…you know, the real treatments. And define “lessened”. In fact, define any of the vague terms you toss around. You really think I’m interested in subjective analysis?

      At one stage my neck was so stiff that I couldn’t turn my head, and I couldn’t get my arms behind my back to do up my bra. (I don’t imagine you have that problem!!!

      Well, if you want me to do up your bra you’re out of luck, I only undo them. But again I highly question a stiff neck to an autoimmune disease. But again, I don’t care about testimonials, I want objective studies.

      Do youself a favour and just give it a try.

      Do yourself a favor: stop writing on and on and cite a study confirming the efficacy of diet to symptom alleviation. Until you do that, I couldn’t care less.

      And if you’ve not figured this out, do not come back to this site with anything other than references to peer reviewed articles, and this also goes for Ebringer. I don’t want any more back and forth; you either cite the evidence in a peer reviewed journal (a reputable one would be nice) or all of your postings here will be deleted.

      Oh, and you never did answer any of the questions I had in my last post. I’m a bit concerned as to why you don’t seem to understand that HLA-B27 is not a gene. If you actually did research you should know what it is.

  6. Carolyn Ching Says:

    Hll gn, Mr. Rnt. hv t plgs fr n nrms mstk md (prt frm gttng nt cnvrstn wth y). dd nt, f crs mn, tht “mn ldng rhmtlgst wll nt ntrtn th d f drgs.” Tht ws typ. mnt, f crs tht th wll nt ntrtn th d f dt. Cn’t ndrstnd wh ‘dt’ trnd nt ‘drgs’, bt cn nl s m mrtfd. prt frm tht, stnd b vrythng sd rgrdlss f yr pnns. n thng ‘m ntrstd n s tht vr thrt n S rfrs t HL-B s gn. ‘m sr y’v rd Mhmmd sm Khn’s bk, “nklysng Spndylts: th fcts.” nd f crs y hv rd, “Th Spndylrthrtds”, whch s, s y wll knw, cmpltn f pprs prsntd b mn dffrnt thrts nd th ltst rsrch, s t whn th bk ws pblshd, n . ws t th cnfrnc n Lndn whn th sm f th pprs wr prsntd tht mk p th chptrs f ths bk. Y wll thn knw tht th chptrs cvr vr spct f S. Hr’s th lst: .Trmnlg, ntrdctn dgnstc crtr, nd vrvw (ndr Cln) . wrldwd vrvw: th pdmlg f HL-B nd ssctd spndylrthrtds (Mhmmd sm Khn) . nkylsng spndylts: clncl spcts (Mhmmd sm Khn) . Rctv rthrts nd Rtr’s syndrm th clncl spctrm (ndr Cln) . ntrc nfctns nd rthrts: clncl spcts (Mrjtt Lrsl-Rp) . Chmyd-ndcd rthrts (Hnnng K. Zdlr nd H. Rlph Schmchr Jr) . Psrtc rthrts nd splndylts: clncl pprch (L.R. pnz nd M.L. Cllr) . Spndylrthrpths n chldrn nd dlscnts (ln M. Rsnbrg nd Rss . Ptt) . Th bwl nd spndylrthrts: clncl pprch (H. Mlnts nd .M. Vys) . Th y n spndylrthrts (Jms T. Rsnbm) . ntrc nfctns nd rthrts: bctrlgcl spcts (Jkk ksl, Pv Tvnn, nd Ks Grnfrs) . HL-B, nkylsng Spndylts nd th Spndylrthrpths (Pl Wrdswrth nd Mtthw Brwn) . Trggrng mchnsms nd T-cll rspnss n th spndylrthrpths (Jchm Spr nd Jrgn Brn) . Mchnsms f rthrts ssctd wth chrnc ntstnl nflmmtn (lrch Bckr nd R. Blfr Srtr) . nml mdls f th spndylrthrpths (Jl D. Trg) . Dss nd tcm ndcs/nstrmnts fr th spndylrthrpths (L. Gl Knnd) . nkylsng spndylts th ptnt’s pnt f vw (Frgs J. Rgrs) . HL-B sbtyps, dss sscptblt, nd pptd bndng spcfct (Jl D. Trg) Rsrch s ngng. nvr sd tht th HL-B gn (lt’s cll t tht vn thgh y dsgr ‘m bsng ths dfntn n mn thr thrts) ws th nl gn nvlvd, n fct n m bk s thr r thr sb-gns nd prhps thr gns. t s jst tht th HL-B gn hs bn mst cmmnl ssctd wth ppl wh hv S. ls s tht mn ppl hv th gn bt d nt dvlp S. ccpt tht y r scntst. m nt. Bt wh s t tht ll th thr thrts rfr t t s gn? gnn qstn. hv ls sd tht vr fw ppl n th rhmtlg wrld ccpt tht dt cn pl n prt n lmntng symptms. Bt th mn lttrs gt frm ppl wh hv sffrd fr yrs nd whs symptms hv mprvd, nrmsl, shws tht t cn. ( cn snd y cps f lttrs f y wsh). hv hd cnsdrbl ntrst n m bk, frm Grmn dctrs. Thr s qt lrg std bgnnng nw n Nrmbrg f th lw-strch dt n rltn t S. cn snd y th dtls, bt bvsl thr wll b n cnclsn fr sm tm. cn ls tll y tht tht th rsn Prfssr brngr’s cnclsns hv nt bn rplctd s fr, s tht stds wr ttmptd, sng th dt sht prprd b hs dtcns. Whn sw ths, bck n , ws pplld, bcs th hd ncldd lntls whch f crs, r vr strch nd wld nt gv sccssfl rslt. Whn qrd ths, Prfssr brngr sd hs dtcns ncldd thm bcs th r hgh n vgtbl prtn. Th hd ls ncldd prtn fds sch s ssgs, whch n th K cntns brdcrmbs, nd vgtbls sch s cbbg. vr th yrs hv cm crss s mch gnrnc bt dt nd spcll th dffrnc btwn crbhydrt nd strch (ll strch s crbhydrt bt nt ll crbhydrt s strch) tht lthgh ws nt srprsd, ws qt dvsttd. blv n brngr’s thr nd hs lbrtr rsrch, nd ls knw tht mn ppl wh ttndd hs clnc wld hv n nrms mprvmnt n thr symptms. Bt bsd n th Lndn S Dt, whch ws th ttl f hs dt sht, blv th symptms wld rtrn n tm. dscvrd ths drng m yr tstng nd rfnng m dt. Hwvr, th nw std bng dn s sng m bk whch dntfs ll fds cntnng strch nd tlls hw t tst fr strch n fd, whch f crs, n frst-yr chmstr stdnt knws. cnnt t ths stg ct n std cnfrmng th ffcc f th dt t symptm llvtn, bt lk frwrd t th rslts f ths nw std. Hwvr, ls knw tht ths stds r vr dffclt nd dn’t ltgthr hld t mch hp. Th nl thng tht gvs m stsfctn s whn gt lttrs frm rdrs wh r s hpp wth th rslts n thr wn bd. B th w, thr sd t b qt fw vr gd rvws f m bk n mzn.cm, bt tht ws cpl f yrs g. Prhps th’v tkn thm ff. hvn’t lkd fr gs. Thr r lrg nmbr f bks nw whch rvl th prblms tht xcssv cnsmptn f strch fd s csng n th wstrn wrld. Y hv prbbl nt bn prtclrl ntrstd n thm, nt hvng hd n rsn t fcs n strch (r crbs. s mst ppl cll thm). cn rcmmnd ‘Lf wtht Brd: Hw lw-crbhydrt dt cn sv yr lf’, b Chrstn B. lln, PH.D nd Wlfgng Ltz, M.D. ‘Gd Clrs, Bd Clrs (pb. n th K s Th Dt Dlsn) chllngng th cnvntnl wsdm n dt, wght cntrl nd dss’, b Gr Tbs. ‘Trck nd Trt: hw hlth tng s mkng s ll’, b Brr Grvs. ‘Dngrs Grns’ b Jms Brl nd Rn Hggn. Lk thm p n mzn. ddn’t wrt t y t psh m bk. wrt nl t ffr hlp. Yr blg sndd s dsprt. Ths s th frst tm hv vr crrspndd wth nyn frm wbst. t wll prbbl b th lst. Bt m pzzld s t wh y wrt n ‘lbrl, fr-thnkng’ wbst nd yt hv sch clsd mnd? ls m n thst. Bt nt bb-tng n (lthgh f crs, bbs r cmplt prtn nd cld b n m dt). Hp y mng t fnd w t f yr prblms. Hv jst trd t cp ∓ pst th lst f rfrncs frm m bk bt t dsn’t wrk. Srr. bvsl y wll prbbl gt vn mr ngr wth ths fnl lttr frm m, bt stll wsh y ll th bst, Crlyn

  7. farslayer9 Says:

    For those keeping score, the bitch who tried to push her bullshit book on my cite has been disemvoweled. The gave a nice long list of “sources” that do not support her claims, then admitted that no research supports her, and continued to offer testimonials. As we know, the plural of anecdote is not data. Her sources did discuss HLA-B27, but we were discussing diet, not antigens (the things that cause 1.8% of those to develop AS…possibly).

    Oh, and she admitted that she’s not a scientist; I am. She is wrong. Period. QED. Wrong. There are no studies supporting her claim. So her book is a piece of shit based upon nonsense.

    She’s also been banned from the site. Have fun in your delusions Carolyn.

  8. larry Ray Says:

    I have just stumbled across the notes in this blog – and I had to write a reply on this site as I am amazed at the angry letters from the person who has just discovered they have AS. I have also suffered from AS for a few years and my open minded doctor told me to try cutting out bread and cakes from my diet, and suggested I stick to meat, uncooked vegs for a while. I actually found this helped my symptoms but it was really boring and I started back on toast every now and then and got bad pains and felt dreadful. I have since cut out all bread and cakes, rice and potatoes etc. and feel better.
    Anyway – what I want to say is that i have read your notes below and I am amazed at your rude reply to someone who has writing what looks to me – rather nice notes. I don’t care who you are or what you do, you should go on a anger management course as you have more problems then AS! Get a life and stop all the hate or you will rot from the inside too!! Also don’t bother to reply to me with one of your extremely narrow minded replies, as I’m not coming back to this site to read your rubbish any more. I guess you will ban me any way as I have not agreed with you – just like you did to that other person who replied to you – any way couldn’t give a stuff – but it just goes to prove how ‘non liberal’ thinking you are

  9. Richard Wolford Says:

    Yes, how ignorant of me to simply request evidence and not testimonials. Tell me, what were your controls, how did you factor the placebo effect? And being nice has no impact on truth or validity.

    Sorry, but all studies I’ve read refute this dietary nonsense. Enjoy the fantasy world.

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